Helpful Links
When DIPG entered into our life we had never heard of it before, we knew nothing about what it was, what to expect or how to get help. When Karter was diagnosed with DIPG we were told to go home and make memories, which we did however we also spent countless hours doing our own research. Below is a list of some links that Nicole and Richard utilized and found helpful.
With years of experience in pediatric oncology, these nurses will directly help you better understand the diagnosis and treatment options, connect you to the proper resources you need, and support you any time throughout your family’s entire DIPG or DMG journey.
Love Chloe Foundation:
Monkey In My Chair
Monkey in My Chair keep kids in cancer treatment connected to their classmates in school.
Each child is provided with a "monkey kit" which includes a big stuffed monkey that takes the child's place in school when they are unable to be there. The kit also includes a small monkey that stays with the child in treatment, a large backpack, a book to help teachers explain to students the situation their classmate is facing and how it affects them, a teacher companion guide, along with other items that can be utilized by the child and/or their classmates. All kits are free to families and hospitals.
A charitable program of Goodwill Industries of Alberta, You Can Ride 2 is a program that offers children with disabilities the opportunity to find joy and freedom through movement by reducing barriers to riding a bike.
The Cure Starts Now represents something truly different. For them it’s not about fighting just one cancer, but the elimination of cancer as a whole. They believe as the experts do; that in order to truly cure cancer you have to focus on those cancers that are the biggest bullies like DIPG. The Cure Starts Now is the first cancer charity dedicated to this “homerun cure.”
This group was formed for everyone that wants to share their children's cancer story, events, and break throughs.
Please join them as they grow in awareness for childhood cancer. are open to all that want to share any Children's Cancer Story.
DIPG Research is Not a Support Group... This is a Medical Group Only...
Due to changes to WHO Classification of Brainstem Glioma's we will also include:
Diffuse Midline Glioma's (DMG)
Which have the H3K27M mutation and may be in the Pons and other areas of the brainstem - additionally any tumour type in the Pons as a cell type, mutation or variant.
The Rees family knows firsthand what it feels like to have a child fighting cancer and would love to encourage your entire family to “Never Ever Give Up” through ClubNEGU. ClubNEGU is a free program for all Courageous Kids that are actively fighting cancer, their SuperSiblings, and Courageous Parents, too! Each registered family receives fun recurring boosts of joy. These gifts are delivered for the sole purpose of wanting them to feel encouraged, bring them smiles, create priceless memories, and help them know they are not alone in this journey.